“I was already born with a genetic defect. It is a very rare disease, the severe form of which we have about two or three in the country,” said 23-year-old Kristýna.
A rare disease can also have milder forms, when people have only one limb affected. Kristýna is affected by all four, plus scoliosis of the spine. Fortunately, the disease is non-progressive, so her condition will not worsen.
However, in order to reach her current state, she had to undergo several operations in her childhood and constantly exercise.
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“The advantage was that my mother was a physiotherapist, so she constantly exercised with me at home from an early age. The way it is now will be forever,” she explained.
Handicap is not an obstacle
Today, Kristýna works as an administrative worker in one of the Znojmo companies. She studied singing at the conservatory, but due to her small lung capacity, she cannot sing.
She does not see the fact that she was born with a genetic defect as an obstacle to enjoying life.
“I often think that if this happened to me in the course of my life, it would certainly be more difficult for me. The fact that I have always been with it and everyone has included me in a normal team since childhood, so I did not perceive it that way,” Kristýna told Novinkám.
Kristý’s friends Markéta and Pavla are a big life support. Both make videos with her, all three spend their free time together. Their friendship has been going on since elementary school.
“I don’t see anything as an obstacle at all. It can always be done,” Markéta told Novinka.
“Since we’ve known each other for a long time, it doesn’t feel like it anymore. We know what we can afford to her, that she doesn’t take it that way at all. It may seem harsh to some that we make fun of her, but since we’ve known each other for so long and she takes it, it doesn’t even bother us anymore,” Pavla added.
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Fate does not choose
It was precisely because of her handicap that Kristýna went to foster parents right after birth, where she grew up. “When I was born, my own parents gave me up. They only found out after I gave birth that I had a handicap. I guess they couldn’t imagine having to take care of me, so they gave me up,” she explained.
“I don’t blame them. I have no need to judge them. I personally know that I wouldn’t do it, so I’m at peace with it,” Kristýna added.
She grew up with a foster family from the age of nine months. Thanks to this, he has 5 other siblings. “I consider them all my own,” she added.
Humor on wheels. Sometimes even indiscriminate
Kristýna was motivated to create a profile and make fun of ordinary situations in her life by a friend who was born without arms and legs. He gave her the impulse that the general population would be interested in how people in wheelchairs live.
“After that, the girls and I went on vacation to the Krkonoše Mountains, and there we said, let’s shoot the first video,” she recalls.
“After this video, it was clear that we had to continue,” she added.
They have currently released almost 60 videos and add new ones every week. All of them are based on common situations of common life. Over the summer, Kristýna also plans to do streams, i.e. live broadcasts on social networks.
In addition, she has a plan in mind to create a podcast where she would like to invite other disabled people and share their stories with the world.
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